jesse_the_k: Wisconsin license plate "B KRE8V" (Wisconsin Creative)

Back in August we got a new van — and wow howdy the surveillance state has arrived at a car dealership near you. The place we bought it tried seven times to get our email — so they could send updates to the car. It comes with three months of free satellite connectivity and defaults to connecting to any mobile device within its red doors.

( ridiculous details )

The good news is there's room for MyGuy to drive my chair up steep ramps into the back, Bella likes it, the seats are comfortable, and we've already scratched it (so we no longer need to be hyper careful).

Any vehicular news in your life?

jesse_the_k: Panda doll wearing black eye mask, hands up in the spotlight, dropping money bag on floor  (bandit panda)

On 8 July, I got a cortisone shot in my middle finger, in hopes of warding off surgery for yet another trigger finger. The PT handed me an oval-8 splint to wear that would help the synovial sheath swelling to calm down.

In the mail today, I got a notice from my pharmacy benefit manager (PBM) one of four profit-making entities that I buy health care from. This EOB notice comprised six sheets of office paper, mailed flat in a 9"x12" catalog envelope with a custom window. On top was the single-sided cover sheet with my and their addresses (to fit the window) as well as a boxed definition of "explanation of benefits" (EOB).[note 1] Next was another single-sided sheet with that actual explanation (details below). Then there are four more pages printed both sides explaining how to appeal (in type too small for me to read). These six sheets were mailed unfolded in a catalog envelope from Connecticut (although Navitus is headquartered here in Madison). For personal mailings, six sheets folded in an envelope costs $0.74 — sending flat sheets increases the cost 230%. Commercial postage is less but too confusing for me to calculate.

In the end, the EOB informed me that I might need to pay $1.20 for the oval-8 splint — more than it cost to send me the notice.

I know that many, perhaps most EOBs document important (nay, oppressive) amounts of money. Yet and still, this system is borked.

Players in my health care team, or, places to duplicate info and mishandle data:

  1. Health plan (we pay $890/month private insurance) https://www.deancare.com [note 2]
  2. Clinic — almost all my care and equipment comes from staff who work for https://SSMHealth.com They get paid by 1, 5, and 6
  3. Small mental health group, home to the "in-network" APNP who deals with my psych meds. https://madisonpsychiatricassociates.com Paid by 1, 5, and 6
  4. Family-owned and -run pharmacy, which gets money from 1, 5, and 6 https://www.ipcrx.com/pharmacy-profiles/2018/neuhauser-pharmacy-madison-wi
  5. Navitus the pharmacy benefits manager, https://medicarerx.navitus.com co-owned by SSMHealth and Costco. 1 pays them administrative fees to pay 2, 3, and 4
  6. Medicare (US government insurance, $170 monthly deducted from our retirement checks) and the only non-profit. Pays most of the bills for 2, 3, 4, and 5.

Note 1: (I’m not going to attempt to spell out what an EOB is. A handful of places try to explain in plain language: https://www.carepartnersct.com/wellness/how-read-your-explanation-benefits-eob

Note 2: I’m super lucky that MyGuy spent 20 years working for #1; he does a great job analyzing the EOBs, among many other skills.

jesse_the_k: White woman w thick glasses, short hair, and smiling eyes looks up (JK 64 optimist)

I've often used eyeglasses to explain how society constructs the lines between "disabled" and "nondisabled." There's almost zero stigma for people who need glasses (in the developed world) -- some people wear them just because they look nice, with plain lenses. On the other hand, using mobility support devices is such a spoiled identity that "she's using that as a crutch" conveys scorn and disdain.

My glasses (in icon) -- which were the best looking and most comfortable I've worn in sixty-one years -- broke 17 days ago. Of course they're no longer made, and my eyeglasses guru reached out to all her distributors and nobody had a pair just laying around.

This really bummed me out: I felt almost as powerless as when my wheelchair breaks. The good news is I have a functional backup pair, so it's not as disabling.

Thanks equally to gentle nudges and desperation, I've been exploring the world of online glasses. (My that sounds dignified. More realistically: I've been obsessively browsing for hours.) Wow howdy they are inexpensive! I doubt they could handle my complicated daily-wear prescription, but I might try them for my single-vision computer/beading distance glasses.


I realized I was extra-vulnerable to failed-AT gloom because I broke my four-year news fast. I'm returning to that boundary. I'm not happy about it. Once I was unhappy about not being able to hike more than 1/4 mile. Now I accept it without thinking.

jesse_the_k: iPod nestles in hollowed-out print book (Alt format reader)

cross posted to the wonderful [community profile] podcastjoy community

An Arm and A Leg is a podcast focused on the cruel cost of U.S. health care. Experienced radio producer Dan Weisman personally crashed into this issue, looked around for help, and realized this was a beat that needed covering. He does original reporting and boosts the knowledge of dedicated fact-hunters and advocates from around the U.S.

Even though the topic is dire, the show is funny and well-edited. What If This Podcast Were A Musical is indeed a musical about the cost of health care!

The Why Are Drug Prices So Random episode turned on a very bright lightbulb for me re pharmacy benefit managers. PBMs are the 41 for-profit companies which determine how much U.S. folks pay for a prescription, no matter whether we have health insurance.

I’ve poked Dan about his wanton use of "crazy" as an all-purpose negative adjective and the lack of transcripts for An Arm and A Leg, and he promises to do better.

In the meantime, a sober evaluation of PBMs from STATnews:

( 350 words about PBMs )

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